Ichthyosis Vulgaris : A Kulit Bersisik Phenomenon in Bali

In 2006, Bali has been surprised by a disease that has never been reported.

The disease is medically called Ichthyosis vulgaris, or in local term known as Penyakit Kulit Bersisik. Bali Health Office (November, 2006) reported that 40 people have suffered from this disease, which were distributed mainly in Tabanan Regency (14 people) and Bangli Regency (11 people). Some of the cases are children under 12. Moreover, the actual number in the real population is probably more than that was reported. Hence, those who are involved in health services, such as health practitioners, health offices, hospitals and even the government of Bali have paid much attention on this rare phenomenon.

Ichthyosis Vulgaris at A Glance

Ichthyosis vulgaris is defined as a congenital skin disease (frequently hereditary), characterized by dry, thickened and crusty skin. It is also called alligator skin and fish skin, perhaps because the clinical appearance is similar to the skin of crocodile or fish.

In this condition, production of the skin cells is normal; however the cells do not shed normally at the surface of stratum corneum (the outmost layer of skin). The shedding process is also as not quickly as it should be. As a result, a build-up scale occurs; at which fine scales generally develop on the back and over muscles close to the joints, such as an elbow or knee. The disease commonly appears and is generally severe over the lower legs. In general, Ichthyosis is not a dangerous and contagious disease. However, it can lead to blindness and rigidity at some parts of the body anyhow.

In relation to the therapy, the important thing to consider is that patients should care for themselves by a simple method such as using coconut oil regularly. This also can prevent the blindness and rigidity. For advance or severe disease, cell therapy is recommended.

Last but not least, due to a hereditary disease, genetically mapping is needed in order to prevent the occurrence of the diseases. However, this idea can create debates, because the implications are often against human rights, such as a prohibition to marry. All in all, in spite of a non-communicable disease, it is still important to overcome and learn this rare phenomenon.

Sources and picture: ( viewed 13 December 2006; cited 21 December 2006)

http://www.kompas.com/ver1/Kesehatan/0611/09/155232.htm
http://medical-dictionary.thefreedictionary.com/Ichtyosis
http://dermis.multimedica.de/dermisroot/en/39957/diagnose.htm